About Us

Who We Are

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 We were founded in 2017 and our aim is to provide information on arachnoid cysts.  We were created by a family affected by arachnoid cysts who struggled with the lack of available information and research in to arachnoid cysts (AC's) for families and people with AC's. Many families and people with arachnoid cysts feed into this site, and if you would like to contribute please let us know.


Whilst it is imperative to seek medical information on your condition from your own neurologist or neurosurgeon, our founders believe this site should support parents and people with AC's to know as much as they possible can about their condition.

What We Do

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We would like to make it easier for people to find as much as they can about arachnoid cysts in one place. We like to show a balanced view but hope this site supports people in having more information on arachnoid cysts.


Right now: 2017-2018

We are currently researching and querying knowledge, NHS and NICE guidelines on arachnoid cysts.

We are currently researching UK organisations of their knowledge of arachnoid cysts.

We are contacting world specialists and leading researchers to initiate research into arachnoid cysts.


We would like to make it easier for people to find as much as they can about arachnoid cysts in one place. We like to show a balanced view but hope this site supports people in having more information 


If you know of further research or information that you think people would benefit from, please let us know to add to this site.

Our Aims

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Our 2017-2018 Aims are:


  • To provide links to research, information and specialists in one place for newly diagnosed and their families
  • To gather experiences and create an Experience Base which will support a larger voice on symptoms and push research 
  • To pull together all social media and support networks under this umbrella site
  • To develop as an organisation, registering as a charity and confirming our constitution and governance

Our Vision and Mission:


Vision: To be the UK leading charity in providing support, information and research into arachnoid cysts.


Mission: To be a support network to families by

  1. Searching for and supporting funding to research into AC's
  2. By being the leading charity for people in the UK on arachnoid cysts.

Coming Soon

Paediatric Information

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Specific area on children with arachnoid cysts

Neurology Talks

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Leading researchers, neurosurgeons and neurologists from around the world give their insight

Support Networks

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Local support groups near to you and your family