Arachnoid Cyst UK
Arachnoid Cyst UK
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    • Home
    • What are Arachnoid Cysts?
    • Research
    • Information
    • Experience Base
    • About Us

  • Home
  • What are Arachnoid Cysts?
  • Research
  • Information
  • Experience Base
  • About Us

NHS (UK)

The national health system are developing their research into Neurological conditions. According to the NICE guidelines, the NHS recognise Arachnoid Cysts in secondary care (hospitals, usually atound rupture) but do not currently 'code' (acknowledge) arachnoid cysts in primary care (General Practitioners). This makes it increasingly difficult to relay symptoms of arachnoid cysts and be referred to a specilaist neurosurgeon.

We are working hard to change this. 


The NHS have recently done some work on developing neurological information for both primary and secondary clinicians.

Find out more

Research in one place

Leading research in one place

We try to keep this site up to date with leading research. If you feel there are more articles or scientific information you would like promoted for people with or affected by arachnoid cysts, please contact us

Google Search on Arachnoid Cysts

Leading Research from around the world

live feed

Online Research Links

NICE

NICE currently have no guidelines on brain arachnoid cysts. This is something we would like to change.

NICE Research

Evidence based research into cysts, treatments and ruptures


Most Recent Ongoing

Research ongoing on arachnoid cysts

PubMed: 2022 Case paper ruptured pathway

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9379718/

2021 UK institute overview of management of a rupture


https://www.tandfonline.com/doi/full/10.1080/02688697.2020.1862057https://www.tandfonline.com/doi/full/10.1080/02688697.2020.1862057

Headaches and Children

Nearly half of all children with arachnoid cysts have headaches

Space Occupying Lesions

Effects of arachnoid cysts on behaviour and affecting symptoms


https://patient.info/doctor/space-occupying-lesions-of-the-brain


NORD (National Organisation of Rare Disorders)

NORD Category

Clinical view on rare disorder


NHS England

The NHS in the UK has no formal guidelines on arachnoid cysts for clinicians.

NHS UK

Links to Hydrocephalus


Publications Worldwide

A myriad of publications from specialists around the world

The Journal Of Neurosurgery

1

2007: AC Case Series

ResearchGate

2

Clinical Presentations

Journal Of Neurology Research

3

Headache Case Teenager

Paediatric AC

4

John Hopkins Medicine

Arachnoid Cyst Information Network New Zealand

5

Useful Inks to medical information


Dr Knut Wester

Population Based Study 2007

1

Clinical and Neuroimaging Outcomes

BMJ: Documented Growth Article

2

Documented Growth: 2017

Quality of Life

3

Oxford Academic Neurosurgery 2015


Latest 2015 onwards

Up to date research articles

Arachnoid Cysts associated with development

2017

https://www.ncbi.nlm.nih.gov/m/pubmed/27832354/

Link with Arachnoid Cyst in children and eyesight

2017

https://www.nature.com/articles/s41598-017-13266-7

Spontaneous resolution to Cyst in Child

2017

https://www.karger.com/Article/Abstract/479328

Arachnoid cyst and links with ADD and ADHD

2011

http://n.neurology.org/content/48/5/1435

Endoscopic treatment of Arachnoid Cysts

2017

 Endoscopic treatment of middle fossa arachnoid cysts is an alternative option to microsurgical fenestration and shunting procedures. 

http://www.neurosurgery-blog.com/archives/11515?utm_content=buffer9e55d&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer

Journal of Neurosurgery: Long term outcomes

2017

Long-term endocrine outcome of suprasellar arachnoid cysts

http://thejns.org/doi/full/10.3171/2017.1.PEDS16404 

Review of Spnal cysts: Journal of Medicine

2008

http://www.mdedge.com/ccjm/article/94902/imaging/review-spinal-arachnoid-cysts

Brain and Lymph link

2015

Researchers at the University of Virginia School of Medicine discovered that the central nervous system is drained by meningeal lymphatic vessels, indicating that there is a strong link between the immune system, which travels via the lymph, and the brain and central nervous system. 

If you find further research links please let us know at arachnoidcystinfo@gmail.co.uk

You Tube Videos: Graphic Content

Latest Treatments

Management of Treatments

Latest Treatments

https://www.youtube.com/watch?v=8QmvZUZAHJQ&t=1296s

Brain Surgery

Management of Treatments

Latest Treatments

https://www.youtube.com/watch?v=gOs69avH8CA

Management of Treatments

Management of Treatments

Management of Treatments

https://www.youtube.com/watch?v=BFbzpuHgDnE&t=11s

Fenestration of Cyst

Dr Amen: Study of 83, 000 brain scans

Management of Treatments

https://www.youtube.com/watch?v=FatgmIxcQ1Q

Dr Amen: Study of 83, 000 brain scans

Dr Amen: Study of 83, 000 brain scans

Dr Amen: Study of 83, 000 brain scans

https://www.youtube.com/watch?v=IIdIMxhB0S4

MRI: What to Expect

Dr Amen: Study of 83, 000 brain scans

Dr Amen: Study of 83, 000 brain scans

https://www.youtube.com/watch?v=Nw6_xmhriG8

Charities and Organisations

Social

Dr Knut Wester Researcher

Dr K Wester

All of K Wester's research into arachnoid cysts and quality of life.

About:

https://link.springer.com/article/10.1007/s00701-018-3603-z

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